The three-day annual fundraising event celebrated a weekend of wine, benefiting efforts to cure Duchenne muscular dystrophy ...

An industry collaborative was formed with the goal of improving the design of clinical trials testing new treatments for FSHD ...

Myotonic dystrophy type 1 (DM1) is the most common cause of adult-onset muscular dystrophy, a genetic disorder that leads to muscle weakness and wasting, but also affects the brain, the ...

Working with Parent Project Muscular Dystrophy and the Duchenne Registry on patient identification and trial awareness efforts ~15,000 children ...

Over 400 Burn Boot Camp locations in 44 states will come together to help raise funds and awareness for the Muscular ...

NORMAL — Illinois State University's Alysia Vrailas-Mortimer has received a $435,000 grant from the National Institutes of Health to continue her work understanding the genetic keys to a form of ...

Oliver Teather, 35, from Lincoln was diagnosed with Facioscapulohumeral muscular dystrophy (FSHD) nine years ago, aged 26.

An El Paso mother of a child with Duchenne muscular dystrophy says FDA delays have cost critical time for children with rare ...

New research shows how muscular dystrophy (DM1) damages the heart over time, stressing the need for early diagnosis and ...

Partnering with Parent Project Muscular Dystrophy to ensure timely access to the trial for eligible patients~15,000 children are living with DMD ...

The Muscular Dystrophy Association (MDA) celebrates today's announcement that the U.S. Food and Drug Administration (FDA) has approved a High Dose Regimen of SPINRAZA(R) (nusinersen) for the treatment ...

Dr. Houman Hemmati, an ophthalmologist critical of the government’s Covid vaccine response, is the front-runner for the role ...